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Rare Disease Day 2017 supports research to help uncover more information on the thousands of rare diseases there are. It’s a global day in its 10^th year with many ways to join in and support it.

Angelman Syndrome is a genetic disorder caused by a problem with gene UBE3A that typically occurs at conception. People with Angelmans are happy and loving but have severe learning difficulties.

February 6-10th, 2017 Feeding tube awareness week. There are lots of reasons, illnesses and conditions that require temporary, long-term or lifetime tube feeding or enteral nutrition. Tips for tube feeding, be patient, schedule enough time.

January 24 is Moebius Awareness day. It gives those who suffer from the condition an opportunity to educate others on it, and to show the world that, despite the physical differences it can cause, they’re just like everybody else. But, with an estimated 1 in 50,000 to 1 in 500,000 children born with Moebius, it isn’t a well-known condition.

January is Birth Defects Awareness month, 2017’s focus is prevention. Take folic acid prior to conception to protect babies from NTD. Too much alcohol can cause Foetal Alcohol Syndrome and numerous conditions.

January is a bleak month for many but can be worse for families of special needs children. Make plans for the year, book a day out. Fundraise or organize a small local event your special needs child will enjoy.